“I don’t look as though there’s anything wrong,” she says, “but I know my limitations and sometimes, I’d rather not go out, than have to leave early.”

Jill’s simple message to others is: ‘Don’t judge the book by its cover’ and is the reason she is sharing her story as part of Cardiomyopathy UK’s Heart Bleeps campaign.

“My ARVC diagnosis was a huge shock because I’d always been very active and exercise was my passion.”

The mother-of-two admits she felt disbelief after her diagnosis: “I thought, ‘How can this be happening?  I’ve always looked after myself! I thought you got heart disease because of poor lifestyle choices - if you were old, overweight, inactive and probably a smoker.”

And with no outward sign of her cardiomyopathy, she often has to deal with the frustration caused by people’s misunderstandings and false perceptions of what a typical heart patient looks like.

“If someone looks disability-free, then any behaviour that seems out of tune with the exterior, such as taking the stairs slowly, not wanting to carry heavy bags or having to sit down and rest, can seem attention-seeking.”

As Cardiomyopathy UK Chief Executive Joel Rose explains:  “There is still a widespread belief in society that heart disease is linked to middle-aged men.

“We need to turn the tide that cardiomyopathy only affects unhealthy people, when it affects hearts of all different shapes and sizes.”