In the past, Aaliyah has been told to, ‘Get a move on,’ or made to leave her wheelchair outside the classroom because there’s not enough space. And when she’s been too unwell to come to school, her efforts to hand in homework have been greeted with, ‘It’s too late now.’

Even when the inevitable bullying takes place, the school’s poor handling of the culprits, means Aaliyah is too afraid to take things further, for fear of making things worse.

Diagnosed with dilated cardiomyopathy (DCM) as a 12-year-old was a huge shock for Aaliyah, from Milton Keynes, who knows it is a condition she is likely never to recover from.

“I’m a young person dealing with the day-to-day problems of being a teenager with an invisible disability, but it’s hard when all the time, people make assumptions about me and constantly say negative things – either accidentally or deliberately – about my condition,” she explains.

Cardiomyopathy UK’s Heart Bleeps campaign is hoping Aaliyah’s story will help change the public’s lack of understanding and misconceptions towards those with serious heart conditions.

Cardiomyopathy UK Chief Executive Joel Rose says: “Our campaign confronts the stereotypes of what people with heart conditions look like, feel or behave and change the widespread belief that heart conditions only affect older, ‘unhealthy’ people.

“Cardiomyopathy can affect anybody regardless of age, gender and personal circumstances.”