Peter's Story
Today, Peter Cope struggles to walk long distances and always keeps to busy routes, knowing there will be help at hand if he falls over or loses consciousness were his ICD to shock his heart into a normal rhythm.
"Why is your wife carrying the shopping instead of you?"
In March 2017, the 59-year-old former physicist from Bristol, was diagnosed with ARVC after his heart went into overdrive during training for the London Marathon.
“I had been healthy for so long and felt pretty much invincible,” says the father-of-two. “Paramedics saved my life, but an MRI scan revealed I had cardiomyopathy.
“I had spent 10 years preparing for the marathon and all my hopes were dashed in an instant.”
With no outward sign of his condition, Peter often has to deal with the frustration caused by people’s misunderstandings and false perceptions of what someone with a heart condition looks like.
“The need to sit down regularly and take breaks from activity may be perceived as laziness or taking a disabled seat on a train or bus may be seen as denying a ‘real’ disabled person the seat,” he reveals.
Now the father-of-two is joining Cardiomyopathy UK’s Heart Bleeps campaign to challenge the stereotypes of a ‘typical heart patient’.
“I realise most people don't understand what they can't see, but my disabilities shouldn't need to be displayed to be believed,” he says.
Cardiologist Professor Perry Elliott, President of Cardiomyopathy UK, says: “We need to abandon the stereotype of what a ‘typical heart disease person’ looks like.
“Misconceptions and negative attitudes such as Peter experiences are a barrier to those living with the condition, but this lack of understanding can also result in someone with cardiomyopathy not getting the treatment they need when they need it.



