Find out more about our campaign to 'piece together' your heart story and how it can help you.
Know your heart story
My heart story: every heart has a story. Do you know yours?
There are at least 160,000 people in the UK living with cardiomyopathy. Did you know that 1 in 3 people were initially misdiagnosed and that many more are living with the condition and don’t know they have it?
Diagnosing cardiomyopathy quickly can help save lives.
Some people don’t realise that they have the condition – too often the signs are missed, or doctors just don’t have all the information they need to make the diagnosis. Misdiagnosis can make the condition worse with the likelihood of sudden cardiac death.
This needs to change.
This November, our national campaign will raise awareness of the signs and symptoms of cardiomyopathy and highlight the importance of knowing a family history of heart disease. We want to show how knowing your 'heart story' could save your life.
If you have a history of cardiomyopathy or other heart conditions in your family, we urge you to tell your GP on your next visit. This information could help diagnose a heart condition at any point in your future and save lives.
Know your heart story
Find out how knowing your heart story can help to diagnose cardiomyopathy.
Find out more
Background information on the campaign messages
Read about some of the background to messages in our campaign.
Read more
Lifestyle management
Ways to manage your heart through lifestyle, for people with cardiomyopathy.
Find out more
Useful organisations
A list of charities and organisations which provide information about support about other heart conditions.
Find out more
This campaign has been partly funded by an unrestricted
educational grant from Novartis Pharmaceuticals UK
