Cardiomyopathy Conference 2020 - Session Recordings
All the sessions from our Cardiomyopathy Conference 2020
On 12 September 2020, Cardiomyopathy UK delivered our most successful conference to date.
Tickets for the event sold out ahead of the event, with 700 registrations and more than 800 people from 25 countries planning on joining us.
We would like to thank everyone that attended on the day, the incredible clinicians that volunteered their time and we would like to extend a special thanks to all those that donated to the Change the World of Cardiomyopathy campaign.
We need your support to make up for lost income due to the impact of the Covid-19 pandemic on our fundraising, as we may lose as much as £180,000 or 20% of our income by the end of this year. Your donations help us to deliver events like the Cardiomyopathy Conference, reaching more people than ever before. If you can, please donate here.
If you registered for the Cardiomyopathy Conference through Eventbrite, you can still view all of the sessions, participate in discussion, network with other attendees and provide feedback about the Conference on our dedicated site www.cardiomyopathy2020.org. Just click the link and put in your email address.
Contact events@cardiomyopathy.org for support.
The following videos are now available to watch on demand
Click the images to watch the videos.
Alison Fielding - Chair of Cardiomyopathy UK, welcomes delegates to the Cardiomyopathy Conference 2020 and introduces the charity.
Professor Perry Elliott - President of Cardiomyopathy UK, provides a detailed explanation of the condition.
Dr Gerry Carr-White - Vice President of Cardiomyopathy UK, provides a detailed explanation of the condition.
Dr Rob Cooper introduces surgical interventions and medical devices for managing a range of conditions.
Dr Kostas Savvatis provides a detailed explanation of the condition.
Dr Robert Jennings provides a detailed explanation of the condition.
Dr Helen Cox introduces the role of genes and gene-testing in cardiomyopathy.
Professor Perry Elliott - President of Cardiomyopathy UK, provides a detailed explanation of the condition.
Dr Juan Pablo Kaski provides an insight into the most frequently observed heart muscles disease in young people, including both cardiomyopathy and myocarditis.
Dr Gerry Carr-White - Vice President of Cardiomyopathy UK, introduces some of the medication available for people affected by cardiomyopathy.
Ali Thompson - Head of Services and Christie Jones - Community Peer Support Manager at Cardiomyopathy UK, run an informal session introducing our work as a whole and how to get involved.
Julie Rees - Peer Support Volunteer and Alyson Smith - Board Member at Cardiomyopathy UK, run an informal session introducing their experiences of supporting someone with cardiomyopathy.
Joel Rose - Chief Executive - Cardiomyopathy UK, welcomes delegates back to the event site with more details about the charity and our plans for the future.
Dr Ian McPherson - Board Member at Cardiomyopathy UK and Ali Thompson - Head of Service at Cardiomyopathy UK, explore the impact on mental health of having the condition, or supporting someone that does.
Yvonne Millerick explores the topic of heart failure, choice and preparing for conversations with healthcare professionals.
Emma Greenslade – Cardiomyopathy UK Helpline Nurse and Sade McCarthy – Youth Support Manager at Cardiomyopathy UK, discuss the impact on young people, their experiences and how to improve services.
Christie Jones - Community Peer Support Manager – Cardiomyopathy UK, chairs speakers responding to welfare-related questions submitted ahead of and throughout the Conference event. On the panel:
- Ali Thompson – Head of Services – Cardiomyopathy UK
- Dr Ian McPherson – Board Member – Cardiomyopathy UK
- Yvonne Millerick – Nurse Consultant Senior Lecturer
- Emma Greenslade – Paediatric Nurse – Cardiomyopathy UK
- William Bartholomew – Independent Financial Adviser
- Osian Evans – Welfare and Benefits Adviser
Joel Rose – Chief Executive – Cardiomyopathy UK, chairs speakers responding to clinical questions submitted ahead of and throughout the Conference event. On the panel:
- Professor Perry Elliot – President – Cardiomyopathy UK
- Dr Gerry Carr-White – Vice President – Cardiomyopathy UK
- Dr Robert Jennings – Cardiology Registrar
- Dr Juan Pablo Kaski – Associate Professor of Paediatric Inherited Cardiology
- Dr Helen Cox – Genetics Consultant
- Dr Kostas Savvatis – Consultant Cardiologist
Alison Fielding – Chair of Cardiomyopathy UK, brings the Conference to a close, thanking those that helped to make the event a success and exploring the ambitions of the charity in future.
Patient Experiences – Julie Taylor
Julie provides an insight into her experience of having ARVC.
Patient Experiences – Chris Battle
Chris provides an insight into his experience of having DCM.
Patient Experiences – Marcia Malcolm
Marcia provides an insight into her experience of having DCM.
A special thank you to all those that spoke at the Cardiomyopathy Conference:
Professor Perry Elliott
Professor Elliott is head of the UCL Centre for Heart Muscle Disease and lead of the Inherited Cardiovascular Disease Unit at the Bart’s Heart Centre, London. Professor Elliott is the President of Cardiomyopathy UK.
Dr Gerry Carr-White
Dr Carr-White is a Consultant Cardiologist at Guy’s and St Thomas’ Hospital, London and a Reader in heart failure and inherited cardiac diseases at King’s College London. Dr Carr-White is the Vice President of Cardiomyopathy UK.
Dr Rob Cooper
Dr Cooper is a Consultant Cardiologist at Liverpool Heart and Chest Hospital.
Dr Juan Pablo Kaski
Dr Kaski is a Consultant Paediatric Cardiologist and the Director of the Inherited Cardiovascular Diseases Unit at Great Ormond Street Hospital.
Dr Kostas Savvatis
Dr Savvatis is a Consultant Cardiologist in the Inherited Cardiovascular Diseases Unit at Barts Heart Centre in London.
Dr Robert Jennings
Dr Jennings is a Cardiology Registrar at St Richard’s hospital, Chichester.
Dr Helen Cox
Dr Cox is a Clinical Genetics Consultant at Birmingham Women’s and Children’s Hospital.
Yvonne Millerick
Yvonne is a Heart Failure Palliative Care Nurse Consultant Lecturer. She works in partnership with patients, families and professionals across NHS Greater Glasgow & Clyde.
Emma Greenslade
Emma is a Paediatric Support Nurse with Cardiomyopathy UK.
Osian Evans
Osian is a Welfare Benefits Specialist and Trainee Social Worker
William Bartholomew
Bill is an Independent Financial Adviser
Dr Ian McPherson
Ian is Clinical Psychologist by professional background; he is also a Cardiomyopathy UK Board Member.
Alison Fielding
Alison is Chair of Cardiomyopathy UK.
Stephen Kirkham
Stephen is a Cardiomyopathy UK Board Member.
Joel Rose
Joel is the Chief Executive at Cardiomyopathy UK.
Ali Thompson
Ali is the Head of Services at Cardiomyopathy UK.
Sade McCarthy
Sade is the Youth Support Manager at Cardiomyopathy UK.
Christie Jones
Christie is the Community Peer Support Manager at Cardiomyopathy UK.
Alyson Smith
Alyson is a Cardiomyopathy UK Board Member.
Julie Rees
Julie is a Cardiomyopathy UK Peer Support Volunteer.
Julie Taylor
Julie is a Cardiomyopathy UK Peer Support Volunteer.
Chris Battle
Chris is a Cardiomyopathy UK Volunteer.
Marcia Malcolm
Marcia is a Cardiomyopathy UK Volunteer.
If you have any questions about the event, please get in touch - events@cardiomyopathy.org
